Bert Vanderhaegen Euthanasia Essay

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Hall E. LAW AND ETHICS (2). Co-Chairs: Tal Weizman, Maria Joana de Sá Ferreira ...... and pharmaceutical companies, funding and marketing drugs and.

UNESCO Chair in Bioethics 9th World Conference

Bioethics, Medical Ethics and Health Law Programme and Book of Abstracts Royal Continental Congress Centre Naples, Italy November 19-21, 2013

Secretariat: ISAS International Seminars, POB 574, Jerusalem 91004, Israel, Tel: +972-2-6520574, [email protected]

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Table of Contents

Programme at a Glance

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Social Programme

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Message from the Conference Presidents

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UNESCO Chair in Bioethics, Unit Heads, Departments and Sponsors

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UNESCO Chair Document Center Network

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Local Ethics Committee Members

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Call for Establishment of New Bioethics Units

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General Information

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Scientific Programme - Oral Presentations

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Tuesday, November 19

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Wednesday, November 20

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Thursday, November 21

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Poster Presentations

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Abstracts Oral Presentations (alphabetical order by author) Poster Presentations (by day and by presenter)

37 167

Tuesday, November 19

169

Wednesday, November 20

177

Index of Chairmen, Speakers and Authors Map of Conference Venues and Location of Halls

Social Programme Tuesday, November 19 - 19:00 in Hotel Restaurant Welcome Gala Get-together Dinner with Musical Accompaniment Wednesday November 20 19:30 Musical Performance in Hall “A” - Amelia and Francesca Rondinella preceded with wine and socializing 21:00 Farewell Dinner in Hotel Restaurant Optional Tours: See conference registration desk

185 inside back cover

Message from the Conference Presidents

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President Carmi’s Message For the first fifty years of bioethics we discussed the construction and development of its concept. The original idea slowly gained its directions and followers, and constitutes a comprehensive perception concerning many issues that are critical for our human society. We are now facing a second stage, a new task, that seems to be even more important, complex and difficult, namely the delivering of our message to society, by planting the ethical values into the soul of the people and into their daily life and behavior. Our task may be and should be realized in two ways, by two different tools: An educational tool and a legal tool. The educational tool will consist of the use of novel methods that will enable us access to the minds of potential “consumers” - the students, the caretakers, the patients and the public at large. The theory and language of bioethics should be translated and adopted by the legislator and the judiciary, and constitute the legal tool. A concrete example can be found in the Universal Declaration of Bioethics and Human Rights of UNESCO, and its application by the UNESCO Chair in Bioethics. The UNESCO Declaration includes 15 ethical principles that have been approved and accepted by all the states worldwide. Our UNESO Chair in Bioethics was authorized to deliver the message of the Declaration to the students all over the world. The first step has been made. We have published ten guidance books for teachers and have established not less than 32 Units in 32 academic institutes on five continents. Each Unit is committed to the advancement of ethics education in its university and around its country. The experts that attend our conference in Napoli are expected to undertake this mission, to start the second step and to establish additional units in their own institutes. You have the knowledge and the close contact to the field of bioethics, you understand its relevance and importance, you have the tools, the wisdom and the courage to motivate this process. Let the Conference in Napoli function and serve as the bioethical lighthouse for the next generation.

Prof. Amnon Carmi Zefat Academic College

President Buccelli’s Message More than 40 years have passed from the brilliant intuition by Potter who proposed ethical thought as the science of survival and a bridge towards the future of human existence threatened by the dramatic progress and massive use of biotechnologies and detached from the necessary focus on moral values and principles. It seems now convenient to review the events that have taken place along that bridge connecting biological knowledge with human values. This must be done in view of a more aware and constant development aiming at a salvational equilibrium between science and society. In this framework, ethical committees, established to meet the need for a balanced cultural and moral mediation at the highest levels, in the confrontation between scientific progress and human rights in a pluralistic and inter -as well asmultidisciplinary framework, are fitly taking part in the spread and progress of bioethics towards creating a correct relationship between anthropology, ethics and scientific research. For such a reason, the Ethical Committee for Biomedical Activities “Carlo Romano” of the Università degli Studi di Napoli, has been engaged for a long time in the promotion and defense of bioethical and medical deontological principles as well as in the ethical training of medical and non-medical staff at international level too, and is now proud to collaborate with great enthusiasm to the organization of the 9th World Conference of the UNESCO Chair in Bioethics concerning the future prospects of Bioethics in the 21st Century. The fruitful collaboration with the UNESCO Chair in Bioethics and their mission as well as with the European Centre of Bioethics and Quality of Life - UNESCO Chair in Bioethics Italian Unit and the great appreciation for Prof. Carmi’s and Dr. Vasinova’s unrelenting activity have contributed to establishing an increasingly closer relationship between the Committee and the above Institutions. Therefore, the present World Conference represents the fair reward for the efforts made by the Committee’s members and Secretariat for their indefatigable activity in favor of a clinical and experimental medicine that respects people and their personal autonomy while being necessarily aware of the need for a balanced scientific progress. I am convinced that this large pool of energies, competences and enthusiasm by the Congress participants will be tantamount to the progress and success of bioethics in the years to come, also thanks to the contribution of Italian experts and scholars among whom we may count many students. I therefore wish everybody fruitful discussions in the beautiful city of Naples rich in history, sensitivity and cultural traditions.

Prof. Claudio Buccelli University of Naples Federico II Ethics Committee Director & International Office for Bioethics Research Head & UNESCO Chair in Bioethics International Network Scientific Coordinator

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The UNESCO Chair in Bioethics

Presidents of the Conference Prof. Amnon Carmi Prof. Claudio Buccelli Vice President Dr. Miroslava Vasinova International Scientific Committee Dr. Yoram Blachar (Coordinator) Prof. Shai Ashkenazi, Dr. Oren Asman, Dr. Jeff Blackmer, Prof. Russell D’Souza, Dr. Leonid Eidelman, Dr. Dafna Feinholz, Adv. Annabel Seebohm, Adv. Leah Wapner, Dr. Cecil B. Wilson, Prof. Chonqi Wu Heads of Units Albania: Dr. Altin Stafa Argentina: Prof. Moty Benyakar Armenia: Dr. Susanna Davtyan Australia: Dr. Irina Pollard Austria: Dr. Gabriele Werner-Felmayer Azerbaijan: Prof. Vugar Mammadov Brazil: Prof. Jose Thome Bulgaria: Prof. Sashka Popova Canada: Prof. Joel Lamoure China: Prof. Li Zhen Croatia: Prof. Sun ana Roksandi Vidli ka Czech Republic: Prof. Tomas Dolezal Fiji: Ms. Sharon Biribo Germany: Prof. Dr. Nils Hoppe India Nodal Center: Prof. Dr. P. Thangaraju, Prof. Dr. D. Balakrishnan North India: Prof. Mushtaq Margoob, Prof. Rafiq Pampori South India: Dr. Princy Louis Palaty Kerala: Prof. Dinesan Narayanan West India: Prof. Anu Kant Mittal Indonesia: Prof. Sajid Darmadipura Israel: Prof. Shai Linn Italy: Dr. Miroslava Vasinova Japan: Prof. Mitsuyashu Kurosu Macedonia: Prof. Mentor Hamiti Malaysia: Prof. Dato Mohd Zin bin Bidin Nigeria: Prof. Yohanna Dangata Pakistan: Prof. Rizwan Taj Poland: Prof. Joanna Rozynska Russian Federation - St. Petersburg: Dr. Galina Mikirtichan Russian Federation - Volgograd: Prof. Natalia Sedova Serbia: Prof Vojin Rakic Sri Lanka: Dr. Harischandra Gambheera Taiwan: Prof. Daniel Fu-Chang Tsai Ukraine: Dr. Radmila Hrevtsova USA: Dr. Harold J. Bursztajn, Dr. Terry Bard Vietnam: Prof. Nguyen Duc Hinh; Dr. Tran Thi Thanh Huong Asia Pacific Bioethics Network: Prof. Russell D’Souza

Education Department Argentina: Moty Benyakar Australia: Irina Pollard, Russell D’Souza, Giuliana Fuscaldo Azerbaijan: Vugar Mammadov Bulgaria: Sashka Popova Canada: Joel Lamoure Israel: Guy Enosh Italy: Fulvia DeMatteis, Anna Maria Traversa, Miroslava Vasinova Nigeria: Yohanna Dangata Serbia: Zoran Todorovic USA: Miriam Cotler

Organized in collaboration with: • Ethics Committee for Biomedical Activities “Carlo Romano” and the International Office for Bioethics Research of the Naples Federico II University • The European Centre for Bioethics and Quality of Life - UNESCO Chair in Bioethics Unit • LifeLong Learning Center of the Naples l’Orientale University

The conference is under the auspices of: • United Nations Educational, Scientific and Cultural Organization (UNESCO) • World Medical Association (WMA) • Israel Medical Association (IMA) • Fourth International Conference, Zefat Bioethics Forum, Zefat Academic College • International Center for Health, Law and Ethics, Haifa University • China Health Law Society • World Association of Medical Law (WAML) • World Psychiatric Association (WPA)

Research Department Albania: Altin Stafa Argentina: Juan Jorge Michel Farina Armenia: Susanna Davtyan Australia: Michael Lupton, Russell D’Souza, Giuliana Fuscaldo, Mirko Garasic Austria: Gabriele Werner-Felmayer Belgium: Laurent Ravez Brazil: Jose Thome Bulgaria: Sashka Popova Canada: Joel Lamoure Czech Republic: Renata Veselska Georgia: Irma Manjavidze, Eka Sanikidze Israel: Guy Enosh, Yoram Blachar, Haim Knobler Italy: Miroslava Vasinova, Paolo Benanti, Nunzia Cannovo, Rosa Maria, Gaudio, Pasquale Giustiniani, Alessandra Pentone, Anna Maria Traversa Japan: Mitsuyasu Kurosu Macedonia: Mentor Hamiti Mexico: Ma de Luz Casas-Martinez Nigeria: Yohanna Dangata Serbia: Jovan Babic, Dragoslav Marinkovic, Vojin Rakic South India: Princy Louis Palaty Switzerland: Lazare Benaroyo Taiwan: Daniel Fu-Chang Tsai UK: Rhys Carwyn-Hooper USA: Terry Bard, Miriam Cotler, Kenneth Goodman

Documents Center of the International Network of UNESCO Chair in Bioethics

The new framework

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The UNESCO Chair in Bioethics

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The Bioethics Documents Center of the International Network of UNESCO Chair in Bioethics I. Purposes: For establishing a comprehensive documents center for collecting and providing bioethics references, teaching materials and related publications, the International Network of the UNESCO Chair in Bioethics, as commissioned by Director Professor Carmi, is planning to set up a “Bioethics Documents Center” under the Network Website. II. Contents: For providing more comprehensive function and presentation, we will use “Bioethics Documents center” to substitute the original category “Publication”. The “Bioethics Documents Center” will contain five sub-categories including: “Case book series”, “Other UNESCO bioethics books”, “Unit Country publications”, “Bioethics multi-media” and “Other types of publications”. 1. Case book series: keep the “case book series” which already exist.

2. Other UNESCO bioethics books: other related bioethics books published by UNESCO. 3. Unit country publications: bioethics books, papers, and other publications published and provided by all unit countries. 4. Bioethics multi-media: bioethics films, dramas, other multi-media publications and links. 5. Other publications: relevant publications but not from our unit countries. III. Framework of the Bioethics Documents Center Website The new Bioethics Documents Center will be arranged according to following framework with sub-categories. IV. Working Plan Once approved by Director Prof. Carmi, the UNESCO Chair in Bioethics secretariat and website maintaining unit will start to contact and collect bioethics documents from contact persons and Unit countries and do the website revision.

Local Ethics Committee NAPLES FEDERICO II ETHICS COMMITTEE President Prof. Buccelli Claudio Vice President Prof. De Placido Sabino Secretary Prof. Mastronardi Pasquale Members Dr. Amirante Igino Prof. Annunziato Lucio Dr. ssa Bryce Jane Dr. D’Onofrio Gaetano Dr. Cacciapuoti Giuseppe Dr. ssa Cannovo Nunzia Dr. Cimino Filiberto Prof. Consiglio Eduardo Avv. Cortese Silvana Prof. De Divitiis Oreste Prof. Del Forno Domenico

Prof. De Michele Giuseppe Prof. Di Renzo Gianfranco Maria Luigi Prof. Donisi Carmine Dr. ssa Gasparini Nicoletta Prof.ssa Izzo Paola Prof. Lobello Roberto Prof. Lombardi Gaetano Prof. Rossi Guido Prof. Rubba Paolo Prof. Saccà Luigi Dr. ssa Vozza Antonietta

EUROPEAN CENTRE FOR BIOETHICS AND QUALITY OF LIFE UNESCO Chair in Bioethics Italian Unit President: Dr. Miroslava Vasinova Vice President: Avv. Agata Bonaudo Secretary General: Dr. Patrizia Scaglia Treasurer: Prof. Anna Maria Traversa Scientific Director: Prof. Carlo Pasetti Scientific Committee Members: Dr. Antonio Belloni, Avv. Stefano Bonaudo, Dr. Antonio Colotto, Dr. Fulvia Dematteis, Dr. Tiziana Devoti,

Dr. Stefano Ghidoni, Dr. Antonella Migliore, Anna Maria Traversa Honorary Members: Mons. Piero Monni, Prof. Antonio Piga Rivero, Dr. Giacomo Sado Founder Members: Dr. Maurizio Castellli, Dr. Antonio Cerruti, Dr. Andrea Leonardi

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The UNESCO Chair in Bioethics promotes

A Call for the Establishment of New Bioethics Units You are invited to establish a new UNIT at your Institute! The United Nations Educational Scientific and Cultural Organization (UNESCO) established (2001) the UNESCO Chair in Bioethics The purpose of the CHAIR is to build, activate, co-ordinate and stimulate an International Network of Units in Academic institutes for ethics education. The Chair has established until now 33 Units in 33 countries in the five Continents. If you wish to establish a new UNESCO Unit in your own institute you may forward your application to: [email protected] For more details, guidelines and list of other Units, see: www.unesco-chair-bioethics.org

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General Information

Conference Venue: Halls A-H Royal Continental Congress Center Via Partenope 38-44 Naples, Italy Tel. 081.7644621 Halls I-K L’Orientale University Palazzo Du Mesnil Via Partenope 10/A - 80121 Naples Tel. 081.6909121 (5 minutes walk from venue - see map on inside back cover)

Language & Simultaneous Translation: The World Conference will be held in English. Simultaneous translation Italian/English & English/Italian will be provided in Halls A, B, and I, and consecutive translation in halls J and K Conference Secretariat: ISAS International Seminars POB 574, Jerusalem 91004, Israel Tel: +972-2-6520574 Fax: +972-2-6520558 [email protected] www.isas.co.il/bioethics2013 Local PCO: Defla Organizzazione Eventi Via del Parco Margherita, 49/3 80121, Naples, Italy Tel: +39 081402093, Fax: +39 0810606133 [email protected] In case of emergency: +39 334 7618996 Press Office Adviser: Dr. Giacomo SADO com - mobil 0039 335 57 89671 The conference secretariat appreciates the generous work of Giacomo Sado and the heads of the Naples Municipality and Campania Regional administration Press Offices Conference secretariat and Press Office are located in the Borbonica meeting room near the Auditorium Hall A

Name badges: Your personal name badge serves as your passport to the scientific sessions. Participants are expected to wear their badges visibly at all times. No badge = no entry. Badge replacement costs 25. Poster presentations should be put up in the lobby area from 08:00-09:00 on the morning of presentation. A hostess will be available to help attach the posters each morning until 10:00. Posters must be removed at the end of the day. The Organizers will not be responsible for posters that have not been collected. Business Centre: Printing, copying and other office requirements can be purchased at the Business Centre located in the Royal Continental Hotel. Accompanying Persons: Accompanying persons do not have entry to lecture halls. The registration fee includes the gala get-together dinner, farewell dinner and folklore evening and a half day tour of Naples - Walk with the Kings, Thursday, November 21. Tour will depart Royal Continental at 13:00 Note: ISAS International Seminars, Defla Organizzazione Eventi and all sponsors shall not be responsible for and shall be exempt from any liability in respect of any loss, damage, injury, accident, delay or inconvenience to any person, or luggage or any other property for any reason whatsoever, for any tourist services provided. Personal travel and health insurance is recommended. Gala Get-Together Dinner: Tuesday, November 19 at 19:00 Hotel Restaurant (Dress - informal) Price: 60 Folklore Evening and Farewell Dinner: Wednesday, November 20 at 19:30 Musical performance Hall A Dinner Hotel Restaurant at 21:00 (Dress-informal) Price: 70 Tickets must be purchased in advance

Hospitality desk: November 19 and November 20: 09:00-18:30 November 21: 09:00-14:00

Tours: For further information and questions about tours, please contact the hospitality desk.

Certificate of Participation: A certificate of participation will be supplied upon request.

Dine Around: A list of nearby recommended restaurants will be provided at the conference.

Access to lecture rooms: Your registration fee includes entry to sessions, conference programme and book of abstract, and coffee breaks. Seating is on a “firstcome, first-served” basis. We recommend you go to the lecture room well before the session starts. Safety regulations require us to limit access to the session if the room is filled to capacity. A sweater or jacket is recommended, as the conference rooms may be cool.

UNESCO Chair in Bioethics 9th World Conference

Bioethics, Medical Ethics and Health Law

Scientific Programme Oral Presentations Poster Presentations

Tuesday, November 19, 2013 08:00-09:00 Welcome coffee

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Your own personal genome: ethical issues in directto-consumer (DTC) genomics services Amy Michelle DeBaets, USA

09:00-10:30 CONSULTA WORKSHOP (1) Hall B ETHICS AND MEDICINE: ISSUES AND PROBLEMS IN SOME AWARD AREAS – I Co-Chairs: Paolo Procaccianti, Filiberto Cimino Current legislation in the field of preimplantation genetic diagnosis in European Union members Francesco Paolo Busardò, Italy Which consent in biobank-based research Gianluca Montanari Vergallo, Italy The donation of a person’s body after death: a question of ethics and science Alessandro Bonsignore, Italy Clinical experimentation on vulnerable subjects: issues on the evaluation of a study on patients of the Italian secure hospitals (OPG) Valeria Marino, Italy Immigrants! How Italian emergency health workers perceive the “other” patients Paola Antonella Fiore, Italy Treatment prospects in sex offenders with paraphilic disorders: pharmacological androgen deprivation between the need for social defense and the right to health Roberta Carrossino, Italy

The ethics of preimplantational diagnosis in “savior” embryos Iuri Cosme Dutra da Silva, Brazil Enhancing human persons: does it violate human “Nature”? Jason T. Eberl, USA Genetic data protection and reuse: ethical implications and legal issues María Magnolia Pardo-López, Spain WPA SECTION ON PSYCHIATRY, LAW AND ETHICS (1) Co-Chairs: Oren Asman, Harold J. Bursztajn

Hall E

Ethical considerations in legal representation of older clients with diminished capacity or impaired competence Meytal Segal-Reich, Israel The study of massive psychic trauma and resilience is fundamental for ethically informed psychiatric diagnosis, treatment and forensic evaluation Harold J. Bursztajn, USA Informed consent in clinical studies on cognitively impaired persons: an ethical dilemma in research Gary Sinoff, Israel Experiencing seclusion: a phenomenological study Dave Holmes, Canada

From Bonifacio’s serum to stamina method: the “overpromising” of alternative therapies Giacomo Tassi, Italy

Long acting injections antipsychotics: ethical issues Irket Kadilli, Italy

The “Stamina” case: bioethical issues Filomena Casella, Italy

BIOETHICS GENERAL (1) Co-Chairs: Vojin Raki , Ariela Lowenstein

SIOF NATIONAL CONGRESS ON Hall C FORENSIC DENTISTRY WORKSHOP (1) THE COMMUNICATION OF THE MISTAKE BETWEEN ETHICS AND PROFESSIONAL ETHICS Co-Chairs: P. di Michele, P. Frati, A. Polimeni

Bio-enhancement or ultimate harm Vojin Raki , Serbia

The physician’s duty to inform in patient’s decision making process Francesco De Stefano, Italy

Ageing at the beginning of the 21st century: longevity, ageism, stem cells research and active ageing Ariela Lowenstein, Israel

What went wrong? The full disclosure policy to the patient Vittorio Fineschi, Italy

Collective consequences of a very long life: the right to life extension could / should be considered a human right Didier Coeurnelle, France

The full disclosure policy: a difficult balancing between information to the patient and communication to the odontologists Alberto Laino, Italy Dentistry and disability Gabriela Piana, Italy GENETICS (1) Hall D Co-Chairs: Jason T. Eberl, María Magnolia Pardo-López

Hall F

Personal identity and extended life: bioethical concerns Rosa Rantanen, Finland

The triangle of dependence in stem cell science: the impact of law, ethics and science on stem cell research and the phenomenon of stem cell tourism Bianca Buechner, Germany ETHICS GENERAL (1) Co-Chairs: Bert Vanderhaegen, Sophy Dombe

Hall G

Human rights and Nigerian prisoners: are prisoners not humans? Istifanus Joshua, Nigeria

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Tuesday, November 19, 2013

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Consciousness: cognitive neurosciences and the problem brain/mind Massimo Gandolfini, Italy

Integration of medical law and ethics into medical training and practice: lessons from the Nigerian story Yohanna Dangata, Nigeria

Empirical ethics and its eternal problem Bert Vanderhaegen, Belgium

HEALTH CARE SYSTEMS ETHICS (1) Co-Chairs: John P. Conomy, Carina Fourie

Bio-ethics issues in literature and the arts: “Ecology of the Soul” mini-essays Marija Emilija Kukubajska, Macedonia

Is there an ethical dimension to contemporary health care reform in the United States of America? John P. Conomy, USA

Together rather than separately - conducting a discussion about ethical dilemmas in a regional multidisciplinary multi-professional forum Sophy Dombe, Israel

Vertical health programmes: ethics and effects on integrated health care delivery systems in Africa Bege Dauda, Belgium

MEDICAL ETHICS (1) Hall H Co-Chairs: Abdul Halim Sawas, Luz Maria Pichardo Garcia Internet, bioethics, and trends of conduct Luz Maria Pichardo Garcia, México Bioethical demand for clinical pharmacokinetic Abdul Halim Sawas, Saudi Arabia Over reliance upon diagnostic aids and its implications upon our practice as physicians Uri Netz, Israel

Hall K

Public accountability and the ethics of health care reform decision-making in Switzerland Carina Fourie, Switzerland Ethical and psychological aspects of trust in the health care system in South Bulgaria Mariana Liotchkova, Bulgaria Towards an ethical analysis of public health reform: why it matters among the indigenous communities in the Philippines Klein R. Fernandez, Australia 11:00-12:30

ETHICS EDUCATION Hall I Co-Chairs: Assya Pascalev, Washirasorn Saengsuwan Developing ethical understanding and designing a rubric to measure progress Marie Catherine Letendre, Italy The interdisciplinary ethics course at Howard University Health Sciences Center: a model of ethics education for in the 21st Century Assya Pascalev, USA Training the moral muscle: a competencies based approach to the teaching and evaluation of professional ethics Johannes Renders, The Netherlands Ethical behavior in temporal perspective: ethical mirage phenomenon in applied ethics Daniela Sotirova, Bulgaria Thai teachers’ opinions and reflective thinking on ethics in science from participating in an academic service project for science teacher development Washirasorn Saengsuwan, Thailand

OPENING SESSION

Hall A

Claudio Buccelli, Conference President, Naples University Federico II Ethics Committee Director & International Office for Bioethics Research of the European Centre for Bioethics and Quality of Life Head & UNESCO Chair in Bioethics International Network Scientific Coordinator Amnon Carmi, Conference President, UNESCO Chair in Bioethics Holder, Zefat Academic College Otmar Kloiber, Secretary General, World Medical Association Georges Kutukdjian, Member of the Scientific Committee of the International Bioethics Society (SIBI) Massimo Marelli, Chancellor of the Naples Federico II University Stefano Caldoro, President of Campania Region Sen. Raffaele Calabrò, Advisor for Health of Campania Region Guido Trombetti, Universities Regional Counselor for Scientific Research, Statistics, Information Technology and Informatics

BIOETHICS EDUCATION (1) Hall J Co-Chairs: Kevin Gary Behrens, Yohanna Dangata

Luigi De Magistris, Mayor of Naples

Mainstreaming African ethics into the bioethics curriculum Kevin Gary Behrens, South Africa

Lida Viganoni, L’Orientale University of Naples Chief Rector

Theory and practice of hospital training for medical ethics - consensus building method with spatiotemporal perspective Kumiko Yoshitake, Japan Bioethics education in a formative and wide model Valeria Trigueiro Santos Adinolfi, Brazil

Giovanni Persico, AOU Federico II General Manager Miroslava Vasinova, Conference Vice-President, President of the European Centre for Bioethics and Quality of Life UNESCO Chair in Bioethics Italian Unit Last minute administrative announcements And now let the conference begin

Tuesday, November 19, 2013

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12:30-13:30 Optional lunch break and poster session

GENETICS (2) Co-Chairs: Froldi Rino, Catanesi Roberto

13:30-15:00

The moral challenges of predictive genetic information Gösta Gantner, Germany

WORLD MEDICAL ASSOCIATION WORKSHOP Hall A DECLARATION OF HELSINKI Co-Chairs: Yoram Blachar, Otmar Kloiber Discussion and ethics-based review of the revisions in either scenario and suggested changes if the policy is not yet approved; if the policy is approved, it will also include a discussion of the potential practical impact of the changes from an ethics perspective Jeff Blackmer, Canada Discussion and legal-based review of the revisions in either scenario and suggested changes if the policy is not yet approved; if the policy is approved, it will also include a discussion of the potential practical impact of the changes from a legal and regulatory perspective Annabel Seebohm, Germany Summary and next steps Otmar Kloiber, WMA Questions and discussion CONSULTA WORKSHOP (2) Hall B ETHICS AND LAW IN FORENSIC MEDICINE – II Co-Chairs: Mariano Cingolani, Pierantonio Ricci The evaluation of ‘malpractice’ is always carried out pursuant to the code of ethics? Sara Campilongo, Italy The reliability of the child’s testimony: forensicpsychiatric issues and ethical-deontological implications Gaspare Ronchi, Italy The right to be born healthy in the light of the Supreme Court’s judgment N. 16754 of the 02.10.2012 Marianna Longo, Italy Medico-legal aspects of sexual violence in the penal codes of the historic states of Italy during the first half of the XIX Century Alessandro Feola, Italy

Hall D

The challenge of medical progress for international soft law - the example of next-generation-sequencing Fruzsina Molnár-Gábor, Germany Science and law in the age of genetics Silvia Salardi, Italy Acceptable applications of Preimplantation Genetic Diagnosis (PGD) among Israeli PGD users Shachar Zuckerman, Israel WPA SECTION ON PSYCHIATRY, Hall E LAW AND ETHICS (2) Co-Chairs: Tal Weizman, Maria Joana de Sá Ferreira Compulsory psychiatric hospitalization of minors - the impossible boundaries of autonomy? Dorit Porat, Israel Ethical dilemmas relating to the diagnosis and treatment of people with autistic spectrum disorder - the psychiatric perspective Nachum Katz, Israel Ethical dilemmas stemming from compulsory hospitalization in a mental health facility: the complexities of the multiple loyalties of the psychiatrist Janna Yakirevitz, Israel Ethical dilemmas regarding the place of mental health within prison system Tal Weizman, Israel Psychiatric compulsory admissions at Beatriz Ângelo Hospital: a report from one year experience Maria Joana de Sá Ferreira, Portugal BIOETHICS GENERAL (2) Hall F Co-Chairs: Brunetto Chiarelli, Johanna Kostenzer Global bioethics: historical and present perspectives Brunetto Chiarelli, Italy

Medication abortion and conscientious objection Marta Giammaria, Italy

Bioethic(s): bridge to the future (of sport) Franco Bruno Castaldo, Italy

Communicating errors and learning from own errors: the mediation as educational instrument Matteo Gulino, Italy

Gender-biased prenatal sex selection - international organizations and the ethical reasons behind dealing with the issue Johanna Kostenzer, Austria

Bioethics and human right’s protection: the role of forensic evidence Rossana Cecchi, Italy SIOF NATIONAL CONGRESS ON FORENSIC DENTISTRY WORKSHOP (2) THE ROLE OF GUIDELINE IN DENTISTRY Co-Chairs: P. di Michele, P. Frati, A. Polimeni

Hall C

Implementing dentistry guidelines in children: pediatric dentistry Antonella Polimeni, Italy Discussion

Through the spectacles of tomorrow: toward a casuistic model for guiding choice in human enhancement issues Anders Herlitz, Sweden ETHICS GENERAL (2) Co-Chairs: Corinna Jung, Jiri Simek

Hall G

Ethics committees in politics - the meaning of ethical deliberation for political decision-making Corinna Jung, Switzerland

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Tuesday, November 19, 2013 Scientific Programme

Volunteerism in the context of pro-social behavior and a possibility of its education Jiri Simek, Czech Republic To free ourselves we need to be slaves of the rules… Alessandra Pentone, Italy MEDICAL ETHICS (2) Hall H Co-Chairs: Miriam I. Siebzehner, Pieter Carstens Big things cost more Miriam I. Siebzehner, Israel Revisiting the infamous Pernkopf Anatomy Atlas: historical lessons for medical law and medical ethics Pieter Carstens, South Africa Primum non nocere v. caveat emptor Ross W. Halpin, Australia Medical futility (MF) - doctor’s point of view: medical futility in Israel health care system 2013 Avi Levin, Israel

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HEALTH CARE SYSTEMS ETHICS (2) Hall K Co-Chairs: Mustafa Volkan Kavas, Jochen Vollmann Pay For Performance (P4P) and estrangement: moral transformation of residents under a new payment policy Mustafa Volkan Kavas, Turkey Does the ‘health brain drain’ pose ethical concerns? If so what can and should be done about it? Theodore Pang, UK Reducing medical education cost with cross subsidy Djoko Santoso, Indonesia “Personalised medicine”: priority setting and opportunity costs at an international scale Jochen Vollmann, Germany Ethical issues of insurance medicine Ekaterine Sanikidze, Georgia 15:00-16:30

The creation of an ethical code on the limits of intimacy and touch in complementary medicine Maya Peled-Raz, Israel

WORLD MEDICAL ASSOCIATION WORKSHOP Hall A HUNGER STRIKES Co-Chairs: Yoram Blachar, Otmar Kloiber

INTERCULTURAL BIOETHICS & LIFELONG Hall I LEARNING WORKSHOP (1) BIOETHICS, LIFELONG LEARNING & SOCIAL INCLUSION – I Co-Chairs: Luigia Melillo, Anna Maria Traversa

Introduction to the session by a moderator and background information

A network to enhance lifelong learning Aureliana Alberici, Italy Universality of human rights and cultural diversity: some thoughts from the perspective of migrations Giuseppe Cataldi, Italy

Hunger strikes and other forms of protest fasting: medical dilemmas, manipulation and medicalization Hernan Reyes, Chile Ethical aspects of hunger strikes; dilemmas for health professionals Vivienne Nathanson, UK

Migrating modernity’s Ian Chambers, Italy

The legal obligations of health professionals – hunger strikes and the law Malke Borow, Israel

Immigration policies for the schools Luciano Chiappetta, Italy

Hunger strikers in detention - the Israeli experience Tami Karni, Israel

BIOETHICS EDUCATION (2) Hall J Co-Chairs: Mitsuyasu Kurosu, Robyn Fellingham

Questions and discussion

Bioethics education in clinical research with model tool Arja Halkoaho, Finland

CIRB (INTER-UNIVERSITIES CENTER Hall B FOR RESEARCH ON BOETHICS) WORKSHOP (1) PLURALITY OF IDENTITIES Co-Chairs: Paolo Valerio, Anna Maria Colau

Teaching bioethics via the production of studentgenerated videos Chris Willmott, UK

Bioethics and occupational safety in gender’s studies Isotta Burlin, Italy

Movies and drama related to bioethics in Japan Mitsuyasu Kurosu, Japan

Puberty blocking during developmental years: issues and dilemmas for gender variant adolescents Paolo Valerio, Italy

Humanising medical ethics: reflections on a bioethics OSCE in a South African medical school Robyn Fellingham, South Africa

Disorders of sex development: the frontiers in a scientific, bioethical and social debate Francesca Dicé, Italy

Attitudes of Lithuanian teachers give notice about a ban of abortions Grita Skujiene, Lithuania

Homophobia and criminal law Gianluca Gentile, Italy Heteronormativity, homophobia and transphobia in sport Cristiano Scandurra, Italy

Tuesday, November 19, 2013 Marriage in Italy between persons of the same sex Alessia Schisano, Italy Pluralities of identities, gender issues and sexual orientation: between bioethics and bio-law - an interdisciplinary reflection Alberto Postigliola, Italy SIOF NATIONAL CONGRESS ON FORENSIC Hall C DENTISTRY WORKSHOP (3) THE ROLE OF GUIDELINE IN DENTISTRY AND CHILD ABUSE Co-Chairs: C. Buccelli, G. Cerretti, M. Niola Guidelines between the protection of the patient’s health and economic constraints Alessandro Dell’Erba, Italy The value of the guidelines and juridical interpretation to protect the patient Paola Frati, Italy Child abuse: evaluation and general aspects Francesco Introna & Valeria Santoro, Italy

17 9

The psychiatrist’s role in the dilemmas arising from the relationship between euthanasia and depression particularly in Holocaust survivors Marnina Swartz-Vanetik, Israel Developing new/reformed psychiatric services - what should be the primary target? Muli Linder, Israel Methylphenidate for cognitive enhancement; myths and facts Nurit Shlafman, Israel BIOETHICS GENERAL (3) Co-Chairs: Jan Hartman, Carmen Pennacchio

Hall F

Communicating bioethics within family context Pasquale Giustiniani, Italy Tobacco control policy in the EU: protecting public health in the free market Iris Goldner Lang, Croatia Medicus amicus: professional ethics in the ancient world Carmen Pennacchio, Italy

Dental caries in children: sign of abuse by neglect? Aniello Ingenito & Pierpaolo Di Lorenzo, Italy Role of guidelines in dentistry and treatment of child: The traumatology of the child - from the event to follow up Enrico Spinas, Italy GENETICS (3) Hall D Co-Chairs: Gabriele Werner-Felmayer, Caroline Guibet Lafaye Visualizing bioethical issues of personal genomics through arts Gabriele Werner-Felmayer, Austria Information on risk genes for breast cancer in a population, to inform or not to inform individuals at risk Jon Snaedal, Iceland Ethical approach and professional responsibility in workplace drug testing Renata Borriello, Italy Ethical and social issues raised by recent research in epigenetics Caroline Guibet Lafaye, France

Bioethics and its claims for competency Jan Hartman, Poland ETHICS GENERAL (3) Co-Chairs: Jos Kole, Liljana Siljanovska

Hall G

Youth work and ethical reflection: stimulating interprofessional ethical reflection Jos Kole, The Netherlands Ethics and evolution Peter Lachmann, UK Media ethics - principles and practices in Macedonian journalism Liljana Siljanovska, Macedonia MEDICAL ETHICS (3) Co-Chairs: Jaroslav Blahos, Svetlana Dimitrova

Hall H

Patients’ expectations of the medical profession - new challenges Iveta Barchovska, Bulgaria Evidence, experience and ethics-based medicine Jaroslav Blahos, Czech Republic

Why justice is good for African health care: first steps towards an African theory of health care justice Samuel J. Ujewe, UK

The Balint method practising in Bulgaria Svetlana Dimitrova, Bulgaria

WPA SECTION ON PSYCHIATRY, LAW AND ETHICS (3) Co-Chairs: Tal Bergman-Levy, Rael Strous

Medical ethics: a guarantee of impartiality versus conflict of interest Cristoforo Ricci, Italy

Hall E

Specific ethical codes for mental health care professionals - do we need to annotate? Tal Bergman-Levy, Israel

Attitude, practice of clinical physicians in Vietnam on medical professionalism Tran Thi Thanh Huong, Vietnam

Patient rights in mental-health care facilities: an empirical study of the phenomenon Rael Strous, Israel

INTERCULTURAL BIOETHICS & LIFELONG Hall I LEARNING WORKSHOP (2) BIOETHICS, LIFELONG LEARNING & SOCIAL INCLUSION – II Co-Chairs: Luigia Melillo, Anna Maria Traversa

18

Tuesday, November 19, 2013

Respect for cultural diversity and pluralism Joel Farcoz, Italy Lifelong learning as an emerging right Laris Gaiser, Italy Policies of Naples municipality for the Lifelong Learning and the migrants Annamaria Palmieri, Italy

CIRB (INTER-UNIVERSITIES CENTER FOR RESEARCH ON BOETHICS) WORKSHOP (2) BEGINNING OF LIFE Co-Chairs: Fabio Buzzi, Maria Luisa Di Pietro

9 Hall B

The intersection of the logics of filiation in the context of beginning of life: a psychoanalytic approach Maria Clelia Zurlo, Italy

BIOETHICS EDUCATION (3) Hall J Co-Chairs: Vina Vaswani, Maria de la Luz Casas

The human embryo between res and person inspired from the legal debate of the ancient world Osvaldo Sacchi, Italy

Positive attitude changes in bioethics students before and after survey application Maria de la Luz Casas, México

Bioethical issues at the beginning of life and female citizenship Emilia Taglialatela, Italy

The implications of bioethics education for developing nations S. Iniobong Udoidem, Nigeria

Political appreciation and judicial control in Italian law on assisted reproduction technologies Andrea Patroni Griffi, Italy

Introducing bioethics course in a medical university in India for the first time - the challenges Vina Vaswani, India

Parental responsibility and responsible parenthood: some reflections about the instruments for the defense of children reference to medically assisted procreation in Italian law Laura Tricomi, Italy

ETHICS KNOWLEDGE OF Hall K HEALTH CARE WORKERS Co-Chairs: Dilara Mamedaliyeva, Maurizio Carnassale Current level of knowledge, perception and practice of medical law and ethics among Nigerian medical practitioners: deficiencies and remedies - the Nigerian model Awawu Grace Nmadu, Nigeria About nurses knowledge of medical deontology Dilara Mamedaliyeva, Azerbaijan The international code of ethics for occupational health professionals: a guide for the physicians who work for Italian Workers’ Compensation Authority Maurizio Carnassale, Italy 16:30-17:00 Coffee break and poster session 17:00-18:30 Hall A EUROPEAN SOCIETY FOR CARDIOVASCULAR SURGERY WORKSHOP BIOETHICAL ISUES IN CARDIOVASCULAR SURGERY: NEW TECHNOLOGIES, NEW FRONTIERS, NEW RULES? Co-Chairs: Domenico Palombo, Oto Oztekin The need of ethical training for cardiovascular surgeons Domenico Palombo, Italy ECMO: limits and indications, a bioethical discussion Oto Oztekin, Turkey EVAR for abdominal aortic aneurysm in elderly patients: bioethical issues Lazar Davidovic, Serbia Peripheral arteriopaty and diabetic patients in endovascular era: is it bioethically worthwhile? Giancarlo Bracale, Italy

SIOF NATIONAL CONGRESS ON FORENSIC DENTISTRY WORKSHOP (4)

Hall C

 Discussion  Election of SIOF President and Assembly ABORTION Co-Chairs: Laura Andrissi, Sara Dejevsarov

Hall D

Cultural differences and the intention to undergo an elective abortion in case of a fetal abnormality Sara Dejevsarov, Israel Immigrant women from sub-Saharan Africa in Italy: a survey on the phenomenon of induced early abortion during their irregular staying: epidemiological, anthropological and ethical aspects Laura Andrissi, Italy The human embryo David ern , Czech Republic Woman’s right to abort a viable fetus Pnina Lifshitz-Aviram, Israel WPA SECTION ON PSYCHIATRY, Hall E LAW AND ETHICS (4) Co-Chairs: Asima Mehboob Khan, Gisela Badura-Lotter Mental disorder and incapacity to make healthcare decisions Claire Rommelaere & Albert Fox, Belgium Assessment of parenting competence in individuals with mental illness and the role of a new kind of legal guardianship in Italy Linda Alfano, Italy The professional discourse on desire for children and parenthood in mental health service users in Germany - reflections of the past on actual ethical challenges Gisela Badura-Lotter, Germany

Tuesday, November 19, 2013 “Mind” and health - an awareness program for media Asima Mehboob Khan, Pakistan BIOETHICS GENERAL (4) Co-Chairs: Éloïse Gennet, Samual A. Garner

Defining an interdisciplinary research methodology linking legal, normative and empirical ethics Éloïse Gennet, Switzerland An introduction to animal research ethics Samual A. Garner, USA Conscience and bioethics: what if everybody were objectors? Michele Saporiti, Italy

Parental conflict separation as an early traumatic event for child Maria Giuseppina Mantione & Alessandra Muscetta, Italy Pathology in the parental relationship: the good praxis for evaluation of parental capabilities Elisa Spizzichino, Italy To preserve the children from parental conflict and divorce by application of juridical and clinical instruments Adriana Mazzucchelli, Italy Conditions and limits of protective measures involving child’s removal from primary attachment figures: psychological and ethical aspects Tiziana Frau & Sabina Gorcelli, Italy

Hall G BIOETHICS EDUCATION (4) Co-Chairs: Sashka Popova, Siti Pariani

Giving them their voices back: a media project offers a floor for the vulnerable Ralf Stutzki, Switzerland Dictatorships reflect societal faultlines Digvijay Singh Goel, New Zealand Law students as agents of social change - moral values and attitudes in Zefat College School of Law Yael Efron, Israel Bioethics and autism: securing the moral compass of children with autism in developing countries Mona Indargiri, USA The assessment of medical professionalism among new paramedical staff under post-graduate training program Chiung-hsuan Chiu, Taiwan MEDICAL ETHICS (4) Co-Chairs: Zafrira Hillel-Diamant, Josef Ku

The childhood trauma in the breakdown of family relationship: clinical and bioethical aspects Angelo Maria Inverso, Italy

Hall F

Bioethics and compulsory hospitalization: the evolution of crack in São Paulo, Brazil Ruy de Mathis, Brazil

ETHICS GENERAL (4) Co-Chairs: Ralf Stutzki, Yael Efron

19 9

Hall H

Hall J

Bioethics education in a South African university of technology - a multidimensional best practice approach Willem A. Hoffmann, South Africa How to learn bioethic in school of medicine (bioethic education) Siti Pariani, Indonesia Working towards a culture of collaboration in medical schools Sashka Popova, Bulgaria BIOETHICS AND RELIGION Co-Chairs: Annie Reiss, Diana Aurenque

Hall K

Bioethics between science and religion Flora Strozenberg & Edna Raquel Hogeman, Brazil Jewish perspectives on distributive justice and economic considerations in medical care Annie Reiss, Israel

Does a child on chronic ventilation have the right to demand home care? Zafrira Hillel-Diamant, Israel

The new law on religious circumcision in Germany and its legal, ethical and political debate Diana Aurenque, Germany

Understanding of euthanasia by medical students Josef Ku , Czech Republic

Christian anthropology vs. the new anthropology and the quest for human perfection Tomasz Kraj, Poland

Pictorial art as alternative way of communication: a case report in a patient with Alzheimer Disease Marina Tullii, Italy Scientometrical studies on hot topics and research structures of Chinese medical ethics in recent 20 years Yanhua Lv, China CHILD PSYCHIATRY WORKSHOP Hall I THE CHILDHOOD TRAUMA IN THE BREAKDOWN OF FAMILY RELATIONSHIP: CLINICAL AND BIOETHICAL ASPECTS Co-Chairs: Angelo Maria Inverso, Fabio Canziani

Coping with religious pluralism in public bioethics discourse Chris Durante, USA

20

Wednesday, November 20, 2013

09:00-10:30 Hall A AOGOI WORKSHOP (1) ETHICAL DIMENSIONS OF OBSTETRICS & GYNECOLOGY – I Co-Chairs: Vito Trojano, Antonio G. Spagnolo

9

Is there autonomy of the will for mentally ill patients? What are the roles for patients, family, physicians and legal authorities? Brazilian solutions and perspectives Washington Fonseca, Brazil A challenging future for ethical decision-making in psychiatry Magdaleen Swanepoel, South Africa

When does human life begin… endless controversies? Asim Kurjak, Croatia

BIOETHICS GENERAL (5) Hall F Co-Chairs: Morten Ebbe Juul Nielsen, Nenad Ceki

Is preimplantation genetic diagnosis ethical? Giovanni Monni, Italy Ethics an essential dimension of prenatal diagnosis Domenico Arduini, Italy

Bioethics in the pharmaceutical industry? Concerns, standards and a strategy for trustworthy reform Jennifer E. Miller, USA

Planned home birth: an ethical challenge for the developed world Frank Chervenak, USA

A survey on the degree of knowledge of bioethics and its application in health management Annunziata Mazzitelli, Italy

BIOETHICS AND FILM: AUDIOVISUAL Hall C RESOURCES FOR TEACHING AND RESEARCH Co-Chairs: Moty Benyakar, Juan Jorge Michel Fariña

Obesity and personal responsibility Morten Ebbe Juul Nielsen, Denmark Bioethical implications of globalisation and societies in transition Russell D’Souza, Australia

Cinema and television: developing subjective dimensions to deal with bioethics Moty Benyakar, Argentina Bioethics in contemporary cinematic narratives Andrea Hellemeyer, Colombia The ethical condition of man: a music-oral reading of the second chorus of Sophocles’ Antigone Juan Jorge Michel Fariña, Argentina INFORMED CONSENT (1) Co-Chairs: Nicole Gallus, Tracey Elliott

Hall D

Free and informed consent to medical treatment and vulnerable persons Nicole Gallus, Belgium From consent to choice: the ethical implications of ‘empowerment-centred healthcare’ Luca Chiapperino, Italy Incompetent patient and therapeutic destiny Alessandra De Gasperis, Italy Factors influencing informed consent implementation in health care service in Indonesia Ivan Rahmatullah, Indonesia Sacrificing proper practice on the altar of the beauty business? Informed consent in the field of cosmetic dentistry Tracey Elliott, UK WPA SECTION ON PSYCHIATRY, Hall E LAW AND ETHICS (5) Co-Chairs: Samuel Wolfman, Washington Fonseca Non-consented ECT treatment for involuntary hospitalized mentally ill patients Samuel Wolfman, Israel Psychiatric treatment consent and the support trustee: from a new form of guardianship to the “cura personae” Diana Galletta, Italy

Metaethics and bioethics: “psychopath case” Nenad Ceki , Serbia RESEARCH ETHICS (1) Co-Chairs: Hedva Eyal, Josep Corbella i Duch

Hall G

Regulation of medical experiments on human subjects: the case of anthrax experiments in IDF Hedva Eyal, Israel Understanding why people refuse to participate in research may strengthen mutual trust and ethical standard in biomedical research...experiences from following up refusals in Kilifi Health and Demographic Surveillance System, Kenya Francis Kombe, Kenya Some ethical aspects in medical and clinical research Rodica Feraru, Israel Clinical ethics committees in Spain Josep Corbella i Duch, Spain The usage of bio-markers in clinical settings: ethical reflections (observations?) Antonio Leo, Italy MEDICAL ETHICS (5) Hall H Co-Chairs: Rachel Nissanholtz-Gannot, Raffaella Rinaldi The truth and the physician Rachel Nissanholtz-Gannot, Israel Ethical and clinical implications of interrupting acetylcholinesterase inhibitor treatment in severe Alzheimer’s Raffaella Rinaldi, Italy The biology of empathy and its role in good ethical practice in healthcare delivery Esther B. Patrick, Nigeria

Wednesday, November 20, 2013 Healthy lifestyle requirements; laudable or paternalistic meddling Lizette Schoeman, South Africa

21 9

10:30-11:00 Coffee break and poster session 11:00-12:30

Social media and medicine: legal and ethical implications Konstantinos Roditis, Greece INTERCULTURAL BIOETHICS & LIFELONG Hall I LEARNING WORKSHOP (3) BIOETHICS, MINORS & ADOLESCENTS: TEACHING BIOETHICS AND METHODOLOGICAL PROPOSALS – I Co-Chairs: Luciano Chiappetta, Miroslava Vasinova Bioethics education in a multicultural society: Aosta Valley Autonomous Region examples and suggestions Anna Maria Traversa, Italy The project “A healthy week!” Claudio Todesco, Italy Ethics problems and values transmission to prevent premature childhood Antonella Migliore, Italy

Principles of the education in bioethics and ecobioethics in medical schools and to the health´s professionals in hospitals in São Paulo Jose T. Thomé, Brazil Bioethics education on vulnerable subjects and groups Zoran Todorovi , Serbia Emotional intelligence as methodology and didactic tool in teaching bio-ethics at nursing schools: practical steps Daniella Keidar, Israel A disability bioethics curriculum that encourages reflection and open discussion among students and community members Julie Rogers, USA Hall K

Judicial intervention in private health care policies in Brazil Daniela Ito, Brazil Legal and ethical challenges in medical rescue Xueqian Zheng, China Legal protection of patients’ rights in China Hong Le, China Health protection between ethics and law Michele Capasso, Italy

What is the role of fetal therapy? Giuseppe Noia, Italy Evolving ethical challenges of HIV in obstetrics & gynecology Pasquale Martinelli, Italy Women and children first: an ethical challenge for the developing world Laurence McCullough, USA Hall B

Hall J

Bioscience ethics education: challenging learning across the generations with particular reference to human reproductive biology Irina Pollard, Australia

MEDICAL LAW (1) Co-Chairs: Daniela Ito, Michele Capasso

Hall A

Cord blood banking public or private? Antonio Chiàntera, Italy

NAPLES FEDERICO II UNIVERSITY ETHICS COMMITTEE & CIRB WORKSHOP (1) END OF LIFE – I Co-Chairs: Lorenzo Chieffi, Giuseppe Lissa

Best practices of Campania URS Ugo Bouchè, Italy BIOETHICS EDUCATION (5) Co-Chairs: Irina Pollard, Jose T. Thomé

AOGOI WORKSHOP (2) ETHICAL DIMENSIONS OF OBSTETRICS & GYNECOLOGY – II Co-Chairs: Giovanni Scambia, Carmine Nappi

At the edge of consciousness: does neuroscience revolutionize law at the end of life? Valeria Marzocco, Italy Technological delay of death Rosalba Tufano, Italy Disorders of consciousness and brain death: medical and ethical considerations Anna Estraneo, Italy From cardiac death to brain death: how death is ascertained Giuseppe Mastroroberto, Italy The right to self-determination of terminally ill patients through the interpretation of constitutional principles Lorenzo Chieffi, Italy Profiles of legal significance of advance directives for medical treatment: experiences to comparison Roberta Catalano, Italy NAPLES FEDERICO II UNIVERSITY ETHICS Hall C COMMITTEE WORKSHOP (1) CLINICAL TRIALS, DILEMMAS THERAPEUTIC, ETHICS COMMITTEES Co-Chairs: Carmine Donisi, Dario Sacchini Contributions from the discussions held by the national bioethics committee on scientific research and the role of ethics committees in Italy Pasquale Severino, Italy Ethical committees in Europe Emanuele Capasso, Italy Insurance coverage in clinical trials in the experience of the ethics committee for biomedical activities “Carlo Romano” Igino Amirante, Italy

22

Wednesday, November 20, 2013

9

The use of placebo in clinical trials: a matter still in progress Danila Faillace, Italy

The legitimacy of race as variable in the deliberations of Institutional Review Boards (IRB’s) Anton A. van Niekerk, South Africa

Light and shadow in the new Italian regulation on ethics committees Paola Buccelli, Italy

Clinical study with medical device in the Lecce ASL Rossella Ileana Romano, Italy

INFORMED CONSENT (2) Co-Chairs: Adam Dolezal, Rima Nakkash

Hall D

Protection of human subjects: introducing the Research Participant and Family Advocate (RPFA) Tomas J. Silber, USA

Informed consent in Czech Republic and Slovak Republic - ethical and legal issues Adam Dolezal, Czech Republic

Is it ethically justifiable to involve children in nontherapeutic research? Domnita Oana B d r u, Switzerland

Informed consent, autonomy and compensation in the twenty-first century - a call for a new approach Nili Karako-Eyal, Israel

MEDICAL ETHICS (6) Co-Chairs: Altin Stafa, Juan Bar el

Practices of obtaining informed consent in Lebanon and Qatar: a disconnect between standards and practice Rima Nakkash, Lebanon Is consent truly informed? The readability scores of information and consent forms for cancer clinical trials and research in Italy Laura McMahon, Italy

Hall H

Physician-patient communication during the endovascular and percutaneous therapeutic procedures: some personal considerations based on a personal experience in an interventional radiologyneuroradiology clinical context Altin Stafa, Italy Ethical aspects of the treatment of people belonging to mythical cults Juan Bar el, Israel

BIOETHICS TRAINING IN INDIAN MEDICAL Hall E EDUCATION Co-Chairs: Mushtaq Margoob, Russell D’Souza, Rizwan Taj

Nothing is what it seems - prenatal diagnosis in Poland Weronika Chanska, Poland

Bioethics applied from the Islamic religion Rizwan Taj, Pakistan

When can a family physician refuse to treat a patient? Yisrael Katz, Israel

Bioethics training in medical education in India current requirements Mary Mathew, India

Assessment of ethics courses in professional ethics education Mariette van den Hoven, The Netherlands

Developing bioethics curriculum in medical education in India - current practice Princy Palaty, India

INTERCULTURAL BIOETHICS & LIFELONG Hall I LEARNING WORKSHOP (4) BIOETHICS, MINORS & ADOLESCENTS: TEACHING BIOETHICS AND METHODOLOGICAL PROPOSALS – II Co-Chairs: Luciano Chiappetta, Miroslava Vasinova

Globalisation and bioethics education and training in India Dinesh Narayanan, India BIOETHICS GENERAL (6) Hall F Co-Chairs: Tatyana A. Sidorova, Susanna H. Davtyan Aspects of normativity in bioethics Tatyana A. Sidorova, Russia

CIRED actions: study cases Giuseppina Iommelli, Italy Understanding the social “fragility” Antonio Esposito, Italy The development of bioethics thinking skills Luigia Melillo, Italy

Principles of responsibility and precautionary in the use of antibiotics and anabolic in cattle: a Colombian experience Gina Lorena García, Colombia

Legal aspects in educational processes: de iure condito and de iure condendo Agata Bonaudo, Italy

The fifteen year experience of the bioethical committee for veterinary medicine Pasqualino Santori, Italy

BIOETHICS EDUCATION (6) Hall J Co-Chairs: Mohammad Baharuddin, Silviya AleksandrovaYankulovska

Bioethics, word curing and music therapy Susanna H. Davtyan, Armenia

Overview learning implementation of bioethics of midwifery education in Indonesia Mohammad Baharuddin, Indonesia

RESEARCH ETHICS (2) Hall G Co-Chairs: Anton A. van Niekerk, Tomas J. Silber

Knowledge, attitudes and practices of nursing ethics medical students in Mali Samba Diop, Mali

Wednesday, November 20, 2013

23 9

Current situation and issues of continuing ethics education in nursing Yuko Hamajima, Japan

The right to self-determination and end-of-life decisions: the role of the fiduciary Barbara Salvatore, Italy

Obstacles to effective ethics education of medical professionals in Bulgaria Silviya Aleksandrova-Yankulovska, Bulgaria

Living will: problematic profiles Carlo Venditti, Italy

Mutual learning to overcome the risk of self-referencing in health professions Antonio Del Puente, Italy MEDICAL LAW (2) Co-Chairs: Kim Hwee Koh, Lucy A. Knouse

Living will according to the Italian Acts Rosa Guarino, Italy Right not to suffer and the analgesic therapies Daniela Minutelli, Italy

Hall K The spiritual assistance Adolfo Russo, Italy

Ethics and regulation of aesthetic medicine - a Singapore experience Kim Hwee Koh, Singapore Right for health protection in CIS countries constitutions Fatima Aliyeva, Azerbaijan

NAPLES FEDERICO II UNIVERSITY ETHICS Hall C COMMITTEE WORKSHOP (2) CLINICAL TRIALS, DILEMMAS THERAPEUTIC, ETHICS COMMITTEES Co-Chairs: Guido Rossi, Antonio Lepre

Development of health bill in Kenya: challenges and lessons learnt Lucy Musyoka, Kenya

Ethical implications of the collection of biological material and relevant information Mimmo de Cristofaro, Italy

Health law and its impact on defensive medicine Lucy A. Knouse, USA

Is there an ethical ground for derogating from individual integrity principles in favour of scientific progress in clinical trials? Claudio Buccelli, Italy

Patients’ rights as an indicator of health system development Fidan Rustamova, Azerbaijan 12:30-13:30 Optional lunch break

An opinion of EC “Carlo Romano” on continuation of treatment in an anencephalic newborn Ida Cerrone, Italy

13:30-15:00 NAPLES FEDERICO II UNIVERSITY ETHICS COMMITTEE WORKSHOP (1) ORGAN TRANSPLANTATION Co-Chairs: Enrico Di Salvo, Roberto Catanesi

Hall A Futile trials: ethical issues Massimo Niola, Italy

Analyzing donation in XXI century: toward new frontiers Alessandro Nanni Costa, Italy Opt-out organ procurement policies and good communities: arguments to improve procurement James L. Nelson, USA Organ procurement: Spanish transplant procurement management Vincent Torregrossa, Spain Harvesting cadaveric tissues for therapeutic transplantation after judicial autopsy: the primacy of ethics in a climate of regulatory uncertainty Carlo Vosa, Italy FEDERICO II NAPLES UNIVERSITY ETHICS COMMITTEE & CIRB WORKSHOP (2) END OF LIFE – II Co-Chairs: Franco Contaldo, Franco Rengo

An opinion of the EC “Carlo Romano” on continuation of therapy in a newborn with a rare disease Maria Antonietta Zinno, Italy

INFORMED CONSENT (3) Co-Chairs: Deirdre Madden, Vered Windman

Hall D

Medical treatment of children and parental consent in Ireland Deirdre Madden, Ireland Medical treatment of minors: child and family autonomy and state intervention Vered Windman, Israel Patient’s right to informed consent in Republic Srpska: legal and ethical aspects (with special reference to the physical rehabilitation process) Igor Milinkovi , Bosnia and Herzegovina A narrative model for informed consent with youth Michelle A. Mullen, Canada

Hall B

Advance health care directives: the living will between self-determination of the person and physician autonomy Pietro Tarsitano, Italy

A call for consensus if the aim is protection: review of vulnerability in research Daima Bukini, Tanzania CULTURALLY RELEVANT BIOETHICS FOR Hall E ASIA PACIFIC Co-Chairs: Mary Mathew, Russell D’Souza, Anu kant Mittal

24

Wednesday, November 20, 2013

The need to develop cultural relevant bioethics for Asia D. Balakrishnan, India Bioethics from the Vedic tradition times application to Asia Manu Mittal, India Novel methods in bioethics education in medical schools Anu kant Mittal, India Role of ethics committee in Kashmir University Arshad Hussein, India BIOETHICS GENERAL (7) Hall F Co-Chairs: Magda Slabbert, Anastasia Zakariadze The dead teaching the living, Von Hagens Body Worlds - art, entertainment, education or a violation of human dignity? Magda Slabbert, South Africa

9

Regional differences in cancer survival of patients: ethical problems of health policy and clinical governance Rosalba Caldarazzo, Italy Doing right for patients: a grounded theory on physicians’ understanding and negotiation of ethical dilemmas Rhodora C. Estacio, Philippines Whistleblow while you work: is it ethically acceptable for doctors to use the media as a means for ‘blowing the whistle’? Chantal Cox-George, UK INTERCULTURAL BIOETHICS & LIFELONG LEARNING WORKSHOP (5) DNA & INTERCULTURAL IDENTITY Co-Chairs: Cinzia Caporale, Giacomo Sado

Hall I

The public perception of neuroscience Agnes Allansdottir, Italy

Institute of bioethics clinical ethics consultation of Università Cattolica: analysis of an experience Dario Sacchini, Italy

Mind as an emergent property Pietro Calissano, Italy

Violating dignity by offering organs for sale? A critical evaluation of dignity in the current debate Zümrüt Alpinar, Switzerland

Genomic studies and ethical issues in the China of the third millennium Daniela Caruso, Italy

Bioethical dilemmas in front of the challenges of contemporary world-teaching, learning, research (TSU experience) Anastasia Zakariadze, Georgia

Perspectives of medicine and genomic-omics Giuseppe Novelli, Italy From bioethics to neuroethics Elisabetta Sirgiovanni, Italy

Demand for circumcision of males is on the increase in Italy: ethics problems Maria Gloria de Bernardo, Italy

ETHICAL DECISION MAKING Co-Chairs: Donrich Jordaan, Patrick Schuchter

RESEARCH ETHICS (3) Co-Chairs: Guy Enosh, Daniel Fu-Chang Tsai

Intuition in clinical reasoning Laura Leondina Campanozzi, Italy

Hall G

Hall J

Power relations in research encounters: implications for ethics in research Guy Enosh, Israel

The regulation of surrogate motherhood in South Africa: a human rights analysis of the genetic link requirement Donrich Jordaan, South Africa

Ethical considerations in racial inclusion for clinical research Glenn Ellis, USA

A pluralistic, multi-methodological model in clinical ethics Evyatar Shayevitz, Israel

Maximum risk standard in biomedical research Joanna Rozynska, Poland

Evaluation of training activities in the field of ethics and health communication in Albania Adrian Hoxha, Albania

The moral obligation to participate in medical research Daniel Fu-Chang Tsai, Taiwan About patients, “inventors”, journalists, scientists and IRBs (to say nothing of the institutions): CCSVI and MS Antonella Piga, Italy MEDICAL ETHICS (7) Co-Chairs: Ahmad Ayesha, Patricia Oliveira

Organizing spaces for everyday ethical reflection - a narrative approach in clinical ethics consultation Patrick Schuchter, Austria MEDICAL LAW (3) Hall K Co-Chairs: Tiziana Maria Devoti, Adila Abasova

Hall H

Rape - a terminal condition of trauma: why palliative care is a better approach than psychiatry Ahmad Ayesha, UK Disruptive effects in patients with burn aftereffects Patricia Oliveira, Argentina

On the urgent need to codify international bioethics law and to form a unified and specialized systems of international and national bioethical courts Victoria Tretiakova, Ukraine International legal protection of child’s medical rights and bioethical issues Aytan Mustafayeva, Azerbaijan

Wednesday, November 20, 2013 How development of the international bioethical legislation influences on Azerbaijan laws Adila Abasova, Azerbaijan Pharmacists-promoters of good health: new profile of professional responsibility Tiziana Maria Devoti, Italy 15:00-16:30 NAPLES FEDERICO II UNIVERSITY ETHICS COMMITTEE WORKSHOP (2) ORGAN TRANSPLANTATION Co-Chairs: Enrico Di Salvo, Roberto Catanesi

Hall A

More professionals in ethics committees Carlalberto Leone, Italy Ethics committee opinion on a case of surgery in autistic child Loriana Paciello, Italy Information and consent, analysis of the exhaustiveness of communication and adequacy of information in biomedical trials with the participations of the expert in psychology Adriana Scuotto, Italy Informed consent, the role of psychologists as communication experts Arianna Iorio, Italy

Ethical issues in the transplantation of uterus Fabio Policino, Italy Sharing opinion and participative research: from people expectations to independent information in organ donation either in hospital than in territorial services Elena Giancotti, Italy Organisational determinants in procurement and transplantation pathway: from evidence review to organizational toolbox Fabiana Rubba, Italy Sociological model of donation Giulia Mancini, Italy FEDERICO II NAPLES UNIVERSITY ETHICS COMMITTEE & CIRB WORKSHOP (3) END OF LIFE – III Co-Chairs: Paola Izzo, Mario Di Luca Natale

25 9

Hall B

End of life care and risk of overtreatments: an introduction Franco Contaldo, Italy Theological reflection on pain and suffering Ignazio Schinella, Italy An ethics of responsibility for managing end-of-life processes Giuseppe Lissa, Italy Therapeutic obstinacy: notes for an analysis of endof-life bioethical issues Emilia D’Antuono, Italy The life-prolonging measures (aggressive treatment) in legislation of foreign countries Francesco Catapano, Italy Therapeutic obstinacy Alfredo Marinelli, Italy Legal aspects of “therapeutic obstinacy” Donisi Carmine, Italy The damage of therapeutic fury Casella Claudia, Italy NAPLES FEDERICO II UNIVERSITY ETHICS Hall C COMMITTEE WORKSHOP (3) CLINICAL TRIALS, DILEMMAS THERAPEUTIC, ETHICS COMMITTEES Co-Chairs: Antonio Lepre, Dario Sacchini

INFORMED CONSENT (4) Co-Chairs: Daniel Sperling, Carlo Pasetti

Hall D

Physician financial and organizational interests: the revised legal doctrine of informed consent and bioethics Daniel Sperling, Israel The role of informed consent in assisted reproductive technologies Faiza K. Aliyeva, Azerbaijan Information, awareness, decision-making: observational study of clinical ethics applied to progressive chronic diseases Carlo Pasetti, Italy “Off label” medical treatments in neuro-cognitive disorders: competency of the patient and validity of informed consent Felice Carabellese, Italy THE ROLE OF BIOETHICS IN MEDICAL EDUCATION IN ASIA Co-Chairs: Russell D’Souza, Tran Huong

Hall E

The call of the Davui: heralding an era of change for the Pacific Sharon Biribo, Fiji Conflict of interest between the institutional goals for advancement of knowledge and institutional ethics issues and solutions P. Thangaraju, India Bioethics curriculum in medical education in Indonesia Sajid Darmadipura, Indonesia BIOETHICS GENERAL (8) Hall F Co-Chairs: Irada Huseynova, Ahmed Binsumeit Khitamy Badawy Resolutions of regional and biopolitical issues in situation of historical and cultural diversity in the Caucasus Irada Huseynova, Azerbaijan Bioethics in the system of fundamental universal human and national values Nigar Kalandarli, Azerbaijan

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Wednesday, November 20, 2013

The Omani National Committee for Bioethics: making regulations and drawing up legislation, with special reference to embryonic stem cell research and end of life issues Ahmed Binsumeit Khitamy Badawy, Oman

The European partnership Barbara Ciampella, Italy

The truth and meaning of the human embryo’s life: from ancient Greece to the contemporary bioethical debate Emilia D’Antuono, Italy

Prevalence of speech language communication difficulties in Italian young offenders Anna Giulia De Cagno, Italy

Healthcare professionals well-being at work: the case of an Italian region Giuseppe Villani, Italy RESEARCH ETHICS (4) Co-Chairs: Charles Weijer, Tapani Keränen

Hall G

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The use of the screening tool in Italy Simona Silvestro, Italy

Recommendations for speech and language therapy in the juvenile justice Tiziana Rossetto, Italy RISK MANAGEMENT AND QUALITY Hall J Co-Chairs: Helen Malka-Zeevi, Pablo Simón-Lorda

Ethical issues in cluster randomized trials in health research: an overview and implications for education of researchers and research ethics committees Charles Weijer, Canada

Clinical risk management and medical and legal sides in the implementation of the telemedicine on more than one medical facility in the transfusion medicine service of the Rome B Local Health Unit Giancarlo Carbone, Italy

Placebo controlled clinical trials: how rationale for the use of placebo is justified Tapani Keränen, Finland

Can ethical evaluation be an alternative way of preventing medical errors? Andreas A. Prokopiou, Cyprus

Ethical issues identified in research proposals reviewed by the school of health sciences research committee Numa Vera, Fiji

Raising the awareness of error reporting as part of organizational culture and patient safety Helen Malka-Zeevi, Israel

Not a dead giveaway: human remains and the researcher’s responsibilities Mark Spigelman, Israel

Content of syllabi of “public health ethics” courses in accredited U.S. programs and schools of public health Pablo Simón-Lorda, Spain

The ethics of research in palliative care in an HIV homeless community in South Africa Therese Maarschalk, South Africa

MULTICULTURALISM (1) Hall K Co-Chairs: Aline Albuquerque, Maria Teresa Tassinari

MEDICAL ETHICS (8) Co-Chairs: Marek Czarkowski, Jining Li

Hall H

Hospital ethics committees in Poland - first attempts Marek Czarkowski, Poland Development of ethical committees in the Chinese hospitals and protection for the patient’s rights Jining Li, China Ethical aspects in treating diabetes mellitus Agung Pranoto, Indonesia Professional interpersonal relationships involving physicians - Croatian perspective Marko urkovi , Croatia Conscientious objection in emergency contraception: is it (a) right? Costantino Ciallella, Italy ITALIAN FEDERATION OF SPEECH Hall I THERAPISTS WORKSHOP (1) YOUTH OFFENDING AND SPEECH AND LANGUAGE THERAPY (YOSALT) Co-Chairs: Tiziana Rossetto, Giuseppe De Michele The YOSALT Project Raffaella Citro, Italy

Intercultural bioethics: the use of human rights tools for conflict solution Aline Albuquerque, Brazil Individual counseling as efficacious strategy for eradication of Female Genital Mutilation (FGM) in immigrant women living in South Italy Luciano Gualdieri, Italy “Umuntu ngumuntu ngabantu”: an Afrocentric approach to bioethics Tambu Muoni, Jersey The person: medicine’s end, not means - analysis from a salutogenic perspective Maria Teresa Tassinari, Italy “Living in a shell of something I’m not”: transsexuality and bioethics viewed from the Jewish-Christian perspective Mathias Wirth, Germany 16:30-17:00 Coffee break and poster session

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